Courage for Corynna

Courage for Corynna

48 notes

Life Takes Guts.: Important update.

hospitalgirl:

First I would like to say please respect our choices. If you don’t like them don’t comment or un follow me.

I am now on hospice. I Have declined far to progressively. There is nothing to be done except a trache, vent, and other life prolonging measures that would just make me suffer. We…

353 notes

hospitalgirl:

This is my life, guys. I don’t get to leave all of this behind at the hospital like a lot of people.  All of this and more is what it takes to keep me out of an emergency (and my definition of an emergency is very high) because I am in intestinal failure. Everything in this picture I just for that, not counting all my other organs. Normally when you are in intestinal failure you could get a small bowel transplant but because mine is caused by mito once my cells started populating the new organ it would go into failure and possibly worse.
So here is what everything is.  -the bag, is my ileostomy. What?! I don’t have crap leaking all over and smell terrible?! No. Just stop.  -the tube that has a green pad under it (the green is a frog dressing) is my gtube. Most Gtubes are used for Eating but mine is used to drain secretions and bile out of my stomach. If I didn’t, I would start violently throwing up and not stop.  -the last with the small blue cap is my appendicostomy. This goes through my belly button into my surgically altered appendix (no I can’t get appendicitis) and into my colon. We give a large amount of a medication through it as it needs to go directly to it. Hopefully soon I will be getting my colon removed.

hospitalgirl:

This is my life, guys. I don’t get to leave all of this behind at the hospital like a lot of people.
All of this and more is what it takes to keep me out of an emergency (and my definition of an emergency is very high) because I am in intestinal failure. Everything in this picture I just for that, not counting all my other organs. Normally when you are in intestinal failure you could get a small bowel transplant but because mine is caused by mito once my cells started populating the new organ it would go into failure and possibly worse.

So here is what everything is.
-the bag, is my ileostomy. What?! I don’t have crap leaking all over and smell terrible?! No. Just stop.
-the tube that has a green pad under it (the green is a frog dressing) is my gtube. Most Gtubes are used for Eating but mine is used to drain secretions and bile out of my stomach. If I didn’t, I would start violently throwing up and not stop.
-the last with the small blue cap is my appendicostomy. This goes through my belly button into my surgically altered appendix (no I can’t get appendicitis) and into my colon. We give a large amount of a medication through it as it needs to go directly to it. Hopefully soon I will be getting my colon removed.

1 note

hospitalgirl:

So this is something I’ve been wanting to write about for awhile. I used to be a dancer. I competed, taught, everything. I spent every free second of mine dancing. Arriving hours early to class to just turn up the music and dance. It was who I am. But now, I can not dance. We I first said goodbye it was going to be a short break. I was very malnourished for months and had to have my 3rd surgery in a year. Up until a week before I was literally begging my teachers to let me dance. And then I had my surgery and I started passing out from being malnourished. So that was two months gone. I got a feeding tube and had to use the wheelchair so I wouldn’t pass out, but my break was still temporary. In August I started realizing that this my bit be temporary. I would have to audition for colleges next year. There wasn’t good chances.  And there came October.
I woke up not being able to walk at all. I had some very bad infections going on in my body that landed me several weeks in the hospital, so we thought that was why. But days and weeks were going by and I wasn’t getting better. And this is when I realized there is very little chance that I will ever walk again let alone dance! And by next year? That’s crazy. So this where I start crying. I couldn’t have a conversation about this without crying. It broke my heart. I lost who I was. So then I started thinking, what am I going to do with my life?i thought about it for a long time. My family has a cupcake business and I’d like to do that but I am not able any more. So I asked why are the things I love? Fashion and makeup. So what better way to combine them than to be a makeup artist? I get to work around fashion, and be apart of it. I can do it in my chair. And I can freelance so I can work around my diease and go to school and live my life. I was really important to me not to go to school forever even though I love school. We don’t know how long my life will be or what to expect so I want do makeup and travel the world and so many other things while I can.

hospitalgirl:

So this is something I’ve been wanting to write about for awhile. I used to be a dancer. I competed, taught, everything. I spent every free second of mine dancing. Arriving hours early to class to just turn up the music and dance. It was who I am. But now, I can not dance. We I first said goodbye it was going to be a short break. I was very malnourished for months and had to have my 3rd surgery in a year. Up until a week before I was literally begging my teachers to let me dance. And then I had my surgery and I started passing out from being malnourished. So that was two months gone. I got a feeding tube and had to use the wheelchair so I wouldn’t pass out, but my break was still temporary. In August I started realizing that this my bit be temporary. I would have to audition for colleges next year. There wasn’t good chances.
And there came October.

I woke up not being able to walk at all. I had some very bad infections going on in my body that landed me several weeks in the hospital, so we thought that was why. But days and weeks were going by and I wasn’t getting better. And this is when I realized there is very little chance that I will ever walk again let alone dance! And by next year? That’s crazy. So this where I start crying. I couldn’t have a conversation about this without crying. It broke my heart. I lost who I was. So then I started thinking, what am I going to do with my life?i thought about it for a long time. My family has a cupcake business and I’d like to do that but I am not able any more. So I asked why are the things I love? Fashion and makeup. So what better way to combine them than to be a makeup artist? I get to work around fashion, and be apart of it. I can do it in my chair. And I can freelance so I can work around my diease and go to school and live my life. I was really important to me not to go to school forever even though I love school. We don’t know how long my life will be or what to expect so I want do makeup and travel the world and so many other things while I can.

3 notes

hospitalgirl:

My mom and I at my benefit last night. It was our second event and it was so succesfull. It’s so amazing to me how many people care and support me. Even the Ohio house rep was there and talked me. (:

hospitalgirl:

My mom and I at my benefit last night. It was our second event and it was so succesfull. It’s so amazing to me how many people care and support me. Even the Ohio house rep was there and talked me. (: